Saturday, June 29, 2013

hello, there.

This blog is for me. Well it’s for everyone who cares to have a glimpse into our lives, but realistically, it’s for me. 

My outlet.

Those who are on my Facebook (and don’t see /haven’t met Hank) were quite shocked to learn of his diagnosis. He IS very much the smart, handsome, silly boy I fill up their newsfeeds with. I don’t fill my statuses with negative talk, because it just doesn’t seem the right place. I do, however, want this blog to be a more fair representation. I choose happiness, I choose to think positive, and for this blog I choose reality.

The truth of our lives isn’t complex; it’s actually pretty basic. We live in a cycle of happiness, faith, tears, joy, pain, hope, and repeat. The good outweighs the bad. I have moments of feeling that another 30 seconds alone of a situation may break me, and ten minutes later laughing with all I have. There are days filled with spinning, self-injurious behaviors, and no eye-contact, and the next day the normalcy is almost overwhelming. Like any parent I wish some days would end already, and stall at bedtime because I want just five more seconds to smell his freshly washed hair before he drifts to sleep.


It’s a blessed life, regardless.